Written by Sharon Tiday
I guess my daughter wasn’t
as lucky as other children
to have a monster lurking
under her bed .
That would pop out say boo
and disappear in a blink of
a light switch .
Her monster was a bully and
although it would disturb her
at night times in the form of
Insominia .
Her monster liked the personal
touch more so found under the
bed to be uncomfortable so
took solace living inside her
body .
At first she was only little and I
guess it was just settling in .
It wasn’t making it presence too
known most of the signs I seem
to find a answer for or thought
I did .
Soon these signs started to
escalate and change from pain
all over her tiny body to headaches
and nausea and then
complete exhaustion .
One night that haunts me forever
you be right in saying it really got
settled in and was now able to
use it’s powerful might and we
were so naive to the nightmare
to come and how our world was
about to turn upside down .
As I lovingly tucked my daughter
into bed suddenly the beast
erupted in the form of violent
vomiting .
Non stop pain etched across
her face .
It was frightfully obvious she
was being destroyed from inside .
The monster was devouring my
little girl .
The days rolled into weeks then
months of being trapped in a
endless nightmare like time had
stood still in our house.
Every morning the battle
began screams that created
fear.
As we attempted daily life .
This monster had became
unstoppable and no mercy did
It show to a desperate family
who’s world was crumbling
around their feet as they
tried to walk a unknown
journey .
When she lay their on the sofa
loosing so much weight pale ,
and frail in between trying
to eat or keep liquid down .
It didn’t feel not a twinge of guilt
when her eyes welled up with
tears not one flinch when her
twin sister begged her to get
well through desperate sobs .
In time we learn’t it will some
times give us breaks if we stick
to the strict rules .
This could turn from days into
weeks and if luck is in maybe months but when we feel a glimmer of hope .
The elation can be short lived.
It sometimes feels it has to
remind us who is boss .
Years have now gone by from
when our uninvited guest made
it self known .
If you came and knocked on our
door you won’t see any signs of
claw marks the scars have cut much deeper then that.
There won’t be any torturous
screaming at times we still weep.
After all these years we know too
well we can’t change it no matter
if we cried a river .
It doesn’t want to leave it made it
so obvious by now so we just toll
the line and sometimes we get the
chance to have a glimpse of
normality .
Which we treasure as we know
it is on borrowed time .
People don’t always understand
the brutality of our monster and
try and make it sound less fierce
by giving it belittling names .
We already know it’s name it’s
called M.E. Myalgic
Encephalomyelitis and it is the
fiercest monster you will ever
meet .
Text © Sharon Tiday
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